Okay so hearing about the experience of the past two weeks and seeing it is completely different, so here we go with the experience of the horror on Ward 10.
Firstly this noise went on all night long
Seeing how I am now in terms of the Lymphedema and the state that I was in whilst in hospital, again very different to see.
Just to cheer you up
Now this post maybe short in terms of length but it’s all about the experience. The sounds that went on throughout the night that meant that apart from the bed I couldn’t actually sleep. The visual look of my body and what state I’ve been left in.
I hope that the short post will again back up the need for me to withdraw from you all for those few days.
I have also been now signed of sick for a period of two months from work with a review period so that if fit and well whilst on Chemo I may be able to commence project work at home. If not then this sick period will be extended.
Whilst on my treatment break I will be taking a long weekend break with my Mr Wonderful and you never know I may turn up in a store near you
If Chemo is going well then at some point the extra KRAS gene funded treatment will be given and this could extend my prognosis by up to 2 years.
When I say that I’m doing things properly this time, I mean that I will take responsibility for my recovery and for once I’m putting myself and my loved ones first. A cleaner started today and this will mean that neither me nor my mom nor Rebecca will have that extra pressure and we will be taking more of those picking daisy moments when we are together as a family.
Internet orders for food shopping will be placed weekly so that this takes away the stress to Steve of yet another job that he was doing.
Changes to our home are nearly complete so that I can manage the best that I can at home whilst recovering. Pictures to follow.
I will be following up the estimated delivery times of the Calendars tomorrow and I will post up when they will be available at the chosen 11 BHS Stores.
I will continue to raise awareness about Bowel Cancer with your help and support by sharing my blog but not at the expense of my health any more.
I will attend Parliament and continue to challenge the unequal funding between Scotland England and Wales. Do whatever charity work I can do, to include interviews, press and any other form of media but again only if it isn’t putting my health at risk in any way at all.
So there you are ‘Wart’s and All’ as normal and that was always the deal with my blog. I hope that you will now understand the whole picture.
My BHS Family have been so supportive and I am so pleased when I read the comments left on my blog on how you now see BHS in a completely different light as the fantastic company that I know them to be and love them for everything that they have done for me, for fund raising and for the massive amount of love that they have given me. So many people facing this awful disease lose their homes or are dismissed as part of the process of employment rights, for example a contractor would just have their contract ended and this happens to people. I could have been facing all of this, losing my home but instead I consider myself very blessed.
The next iBook will be free as this was never about making money for us. Your words via the comments pages will form part of that book, I have already had fantastic reviews left on iBooks regarding this so thank you for leaving your reviews.
And finally thank you to you all who have sent me extra soft furnishing presents for Daisy Den. Karen Brindle AKA Potter sent me today the most amazing hand made bunting which is just beautiful, again photos to follow when it’s up. And I have also received a handmade Daisy Den sign that is already in place, photos to follow.
And really really finally I must thank my Angel Rita Jackson who championed me for the SOS fund that has provided the NASA state of the art bed that will change my life with Steve and again this has been given to me by my BHS family. Sometimes there are just never the words to say thank you but I am as is my family eternally gratful for what my BHS Family have done for me.