Relief at last, in more ways than one!

So with the days post done and posted up. The normal routine of the household continues here. Rebecca has returned to her evening Maths class, so she eats early and goes there for 7 pm. Steve takes her and whilst he is out I start the dinner. We have planned spag bol, my least favourite meal but as we plan the meals for the week in advance I always think that they should have what they want whilst I can’t normally taste anything by now. That side effect is kicking in slowly, blurh.

Steve returns and I just can’t face eating it so I settle for a salad and anti sickness pills. Plus another laxative drink as I am determined not to have to go through an enema tomorrow. Can you imagine the embarrassment? The house will be full of builders, Steve and mom downstairs knowing that the nurse will be inserting a bomb up my bum and just waiting for the explosion. Now just yesterday I took 4 lots of laxatives and nothing happened. The maximum dose is 8 which is for a complete blockage of the bowel. I’m up to number 5 by now and still nothing, not even a stomach rumble or wind. Steve picks up Rebecca for me at 9 pm as I dare not travel far from our loo just in case. Number 6 is taken and still nothing.

Now curfew time tonight I decided that instead of having fun we just spend 1/2 hour freeing up the plastic storage boxes out of the loft throwing some of our real junk away that we have stored for years. These boxes will then be used to take the three man drawers of tools out of my kitchen into the garage so then I can take control of my kitchen again. When I went to the hospice and they advised me to come up with a wish list, the only things I wanted to do were to sort out the garage and the loft. I don’t want to swim with a dolphin or climb Mount Everest but I do want to sort out these two areas as if ever Steve wanted to sell the house after I have gone he just would never be able to face doing it. I have to prepare this house for him and Rebecca and although my suggestion was greeted with no enthusiasm at all, I stuck to my guns and 5 boxes of rubbish from the loft were cleared and I have cleared out the man drawers :-) Girl power hey!

As the evening draws to a close Steve prepares laxative drink number 7 but I went for a wee first and Hallelujah I didn’t have to drink the now prepared drink, things were starting to move at last and the relief of that was amazing. It was one of those moments when you want to shout out loud to announce it, hire a professional Town Crier to ding a bell outside your house to say ‘oh yea oh yea oh yea Wendy’s bowels have moved after 6 long days’ whilst I dance up and down the street waving my knickers in the air. I hope this illustrates how happy I am.

So today is going to be consumed with the hospital. Last night we were called to say there was an MRI scan cancellation and would we be able to take the appointment, the answer of course was yes. Frankie is in for chemo so I want to see her and the bum bag of drugs connected via my PICC line has to be removed today too so I get them all planned in together.

Tia being grateful for once
Tia being grateful for once

This mornings usual routine didn’t go as planned as no Tia (the ungrateful rescued cat in sight) Molly didn’t even come to say hello is it was so early. Coffee was normal but the 1/2 a biscuit was replaced by a full biscuit which also came from Jane in the Isle of Wight, very nice it was too and much like a Penguin chocolate bar, very chocolatey, thanks Jane. Tia eventually turned up and after she had eaten she came for some love which is unlike her so we had a selfie taken together for you all to prove that she loves me really.

I don’t have an appointment for the results of the MRI scan but Steve and I have enough experience now to know that if there are any problems whatsoever they call you up. I have never had an MRI scan before but I know that people don’t like them due to the small tube you go into and the loud noise the machine makes. I ask Steve to check if I have to have nil by mouth before hand or drink my own body weight in water as you have to do this for CT scan but with an MRI scan apparently not, so happy days. The procedure can take up to 90 minutes which involves you lying still. Now last week this would not have been even possible due to the acute pain when I lie down but I’m confident that with the new drugs I will be fine.

Talking of drugs I thought you may or may not like to know the drugs that I now take just to function. These confuse me and I’m always checking with Steve which ones I should be taking when. I blame chemo head. so they all have to be written down in a book so that I have a complete record every day.

  • 1st thing – 1x Lansoprazole – tummy protector for the drugs to come throughout the day
  • 7 am – Zomorph – slow release morphine,which slows your bowels down
  • 8 am – Gabapentin – the nerve pain killer, which slows your bowels down
  • with breakfast – 2 x Dexamethazone – anti sickness pills following chemo which mess up your sleep pattern, which slows your bowels down
  • with lunch – 2 x Dexamethazone, more anti sickness pills following chemo that mess up your sleep pattern, which slows your bowels down
  • 4 pm – Gabapentin – the nerve pain killer which slows your bowels down
  • 7 pm – Zormorph – slow release morphine, which slows your bowels down
  • midnight – 1 x Gabapentin – the nerve pain killer which slows your bowels down

So you can clearly see why my poor bowels stopped for 6 days. I will have to take laxatives on top of the list above everyday until we find the right daily amount as I have learnt now not too leave it so long before I confess to my problems but I, like many, don’t like talking about poo.

Mom comes with me for the MRI scan, all jewellery removed but at least I don’t have to wear a gown of shame. The choice of music for me to distract from the noise of the machine is Jazz or Motown, now Steve will be impressed as I don’t like Motown but it’s that above Jazz any day. You have to lie still on a hard bed that fits into the the machine, they can talk to you and there is a panic style button if you need to talk to them. The important thing about this scan is that you have to be still. There isn’t much room in the tunnel at all but with your eyes shut it doesn’t matter. My problem is lying flat and still. As the time goes on the pain starts in my back and leg. I struggle to hold the position as the pain just keeps coming and ‘The Tears of a Clown’ is just not helping either. The weird loud noises vary from loud bangs to machine gun fire. They count you down, 8 minutes, 5 minutes and then 3 minutes, how long 3 minutes can seem hey. Finally I’m out and free but it’s set off the pain and now I’m back to being bent double and walking strangely again.

I miss Frankie on the Sunrise ward by about an hour :-( but we will eventually meet up as her treatment is every 3 weeks and mine every 2 weeks.

My new chair :-))
My new chair :-))

As DFS is only 1/2 a miles drive mom and I still go as I just want to see the reclining chairs and to try them. Now my mom can’t resist a bargain and they have one and it’s just perfect but I don’t have the money. Mom insists on buying it for me as she knows what little sleep I get and if I can’t be outside in my chemo gazebo then I do struggle to get comfortable on the sofa in the kitchen. I’ll pay her back but it’s coming today and it means so much to me, thanks bank of mom, you are a star.

Frank and the Daisy Den foundations
Frank and the Daisy Den foundations

We return home and the progress of Daisy Den’s platform is coming along nicely :-) with good weather ahead of us it should dry quickly too. Now we just need delivery of Daisy Den to be nearer to 4 weeks than 6.

 

 

 

 

Massive thanks to everyone who has decided to change their planned fund raising this week to Beating Bowel Cancer. Send me your photos and I will put them in the blog. Thanks to Leanne again from Beating Bowel Cancer who has organised a full fund raising pack to be delivered to my beloved team at BHS Kingston tomorrow for them to make the day a success, Karen you will have everything you need so go girl and the team as I know you will make me proud. The challenge is to beat High Wycombe’s leading total of £153, I know you can do it, I have every faith. Now there’s a challenge too for you Mr Grumpy Bum and the BHS team at Uxbridge lol :-)

IMG_4533Now I know us girls can be emotional and we are better sometimes at expressing our feelings but yesterday I received a text from Mr Vines who is on holiday. Now he could be on the beach, getting drunk, sight seeing or whatever he normally gets up to on holiday but instead he goes to a church to light a candle for me as he is following Rita’s footsteps. He isn’t a religious man by his own admission but I was just so touched that he did this for me whilst on holiday. Thank you Mr Vines, it’s appreciated so much as is all the daily love and support that I get from you all. It really does help me every day, thank you.

IMG_4532

And finally a massive Happy Birthday to our niece Cerys, I hope you have had a lovely day and we all send our love to you xxxxx

 

 

 

 

 

Published by

Wend

Married to Steve, I have two children - Rebecca and Richard. Steve has two children, Lauren and Chris. Rebecca lives with us (nurse Rebecca) and my mom Judy also has become nurse and housekeeper but lives in the West Midlands. My son is in the Army and comes home when he can. I am 47, born in 1967 and I was told I had bowel cancer on 22nd Feb 2015 and this blog is my journey through it. I hope it helps you as you were the reason I started it.

16 thoughts on “Relief at last, in more ways than one!”

  1. So so glad that your pain is a lot easier now,
    Finger crossed for the results on the MRI,
    I’ve heard that a major job has broken out in High Wycombe, DYNA ROD has been working all day to clear a blockage in the drains, your blog explains it all now, haha
    Not long know and you will have your Daisy Den, I’m so excited for you.

    Thinking of you as always, love to you and give your mom a big hug from me, bless her for the chair, xxxxxxxxxxxx

    1. Lol lol lol love it, very funny but true there is 6 days worth to come out yet! My mom is a star hey :-) bless her. Daisy Den base will be finished tomorrow :-) now we just need the actual Den itself xx

  2. Hey wen I thought the bank of mom wasn’t open for 6 months. Bless you Judith!! Hope the results are in soon for the scan and that it’s more good news!! Sorry that the scan hurt your back though. Hope that eases soon. Good job they had a cancellation or I don’t know how you would have managed. So happy for you with the way your feeling at mo. Love to you all!! Xxx

    1. I know how lucky am I :-) but it will make such a difference to me. Pain still there which makes me sad as it’s started again and I have had some good pain free days lately which I miss now. Results should take a week xxx

  3. I can’t breathe – The Town Crier ringing the handbell “Oh Yea Oh Yea Wendy’s done a number two” so so funny.

    …and Tears of a Clown in the MRI. I’ve closed my eyes both times I have been in one too.

    Ooh I love the recliner – just the job. I wonder how long it will be before you have to skulk off to the settee because someone else is snoozing in it? I propose a secret £5 fine (to BBC of course) for first person found sleeping in it (other than you)

    Off to watch GBBO although it’s getting a bit ridic because they’re clearly running out of ideas. I can’t imagine what tonight’s technical task is going to be – an eggless, flourless, sugarless sponge that can levitate 10 foot above the tent On your marks, get set BAAAKE

    Goodnight Clutter Fairy x

    1. Glad you liked today’s post but I really was that excited to go to the loo after 6 long days :-( I agree and I think my mom may have to be the first to pay as she looks too comfortable in it, bless my mom hey, what a star xxx

  4. hey wendy
    who knew the blog reading folk would be pleased to hear about a number 2!!! I know I am you’re saved from that enema happy days.
    Super excited about the daisy den Holly willabooby had better watch out you could give her a run for her money in the design stakes.
    Thinking of you all everyday
    Debs xx

    1. I know, I’ll share everything with the world now but I really didn’t want an enema yuk yuk yuk so it was drink laxatives until it worked and thankfully it did :-)
      Holly had better watch out hey! Thanks for thinking of me daily, it means so much xxx

    1. I can’t wait either, you will have to come down when it’s done with my lovely Aunty Shelia too :-))) xxx and the results will be what they will be, we are not used to good medical news here but maybe our luck will change hey xxx

  5. God Bless Mom, A True Star and beautiful with it xxx
    it looks incredibly comfy, I hope you have lots of restful siestas in it X
    Bless your poor wee bum, it’s done you proud :-)
    What a celebration that was, I had visions of your display of happiness running up and down the street with your knickers in the air lol X

    Check Mr Vines out!!!! So thoughtful :-)
    Do you think he’s after my job lol :-)

    MRI’s noise is shocking and you gave a fantastic description of it but believe it or not I fell asleep in mine lol they had to wake me up !!!!!! I Swear to God I did lol
    Prayers as always for positive results that it hasn’t got to your bones X
    That’s some medication OMG !!!!!! And there’s me telling you about feeling sick because of what I was taking lol I’m pathetic lol hanging head in shame :-(

    Not long to the Conference sweetcheeks :-) getting excited at seeing you again xxx

    Pain management is sounding really positive, long may it continue xxx

    Well I’m off to steam my head lol Dr’s orders lol
    A wee steam head bath with a wee dab of Vic’s in the water for good measure lol

    Big Loves, Slobbery Kisses & marshmallows Hugs Always xxx

    1. No one could replace you but I just thought it was lovely. Bowel movement was a blessing :-) Chair is amazing and God bless my mom hey. How could you fall asleep with that noise going on, mad you are. Tuesday night drinks next week and Leanne is there from Tuesday night too so it will be a fun night I think :-) Drugs are a massive list but needed and there are more optional ones too plus the oral morph, I have so many I have had to devote a whole kitchen draw to them, hence moving my Mr Wonderfuls stuff out, see I had a plan :-) xxx

  6. So all us religious lot have been praying for pain reduction and number 2s and, hey, it worked! I had a choice of Motown, Jazz or Easy Listening and went for Motown thinking I might be able to hear some of it over the racket. What a din. They did my brain once and the whole machine shakes violently with that, lol! Awful staying still for so long, I had 45 mins on my front with my boobs in two holes as they checked out breast cancer, I could barely move afterwards! The NHS has the most wonderful line in torture that I know.

    Ha ha! Tia’s realised that winter is coming and she is suddenly grateful. Typical moggie, ours is the same Hope she realises that the Den is entirely for her. Also has she attacked your wig yet? I foresee that coming at some stage.

    Keep smiling and remember you are my holiday reading! Love your chair too I can see that we will all have to form an orderly queue to try it out.
    Xxxxxxxx

    1. I hope the holiday is going well. OMG I hadn’t thought about the wig and the cat :-( she had better not have ideas of playing with that! Thanks for your prayers as hey have worked :-) She will think the Daisy Den is just for her too ha ha I think not xxx

  7. Glad to hear you’ve blocked the drains of high Wycombe. ..lol
    And you are right cos no one talks about the action behind us but it is the funniest of subjects when raised. Cos I’m Mr 7 o’clock and you must ask cousin nicky if the maintenance man remembers their faces at premier inn Stansted or karl’s story of friend with no paper so off comes the sock
    But on a serious note the awareness alone of BC that you spread is vital ( again thinking of others )
    It was my prompt and after a course of moviprep I had investigations and men never talk health ( spent some time on ward with nicky. ) blessed only with IBS but sick with worry. Must of aged 10 yrs so how you cope is a strength in its self .
    TODAYS TIP. Use a SICK day when you struggle to walk to visit your daisy den maker and ask if they can pull their finger out ..
    WISHING FOR NO PAIN TONIGHT

    1. Thanks Colin for baring your story too, it’s something that we just silently worry over but it’s to serious to ignore. I breaks my heart to hear of 26 yr old’s dying because their doctor didn’t take the signs seriously, I was told I was too young for bowel cancer too! Movie prep is awful stuff isn’t it just not even describable to anyone who hasn’t had it. And this journey has never been about me it’s about my loved ones, they are the ones who suffer the most and need love and support. I just want to help others and prevent anyone else going through this shit if I can. Thanks again for your comment as it means so much to me xxx

Leave a Reply

Your email address will not be published. Required fields are marked *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <s> <strike> <strong>