Quick update from Stoke Mandeville Hospital

Rebecca here with a quick update from Mum, who is still in Stoke Mandeville Hospital. I am writing it for her as she tells me what to write.

She is getting stronger everyday. If this continues, mum may be allowed home if medically possible.

I’m sure when mum is home and settled she will continue with her much loved blog and connection to you all.
Mum knows you are all thinking of her, but she still needs some space for a few more days. She appreciates the messages from you all.

 

Rebecca xxx

Another good day :-)

Long may these good days continue hey! So last night I had to sleep on the Dream Machine chair as I gave up trying to sleep upstairs. Not long now anyway until the Dreams bed arrives and I can finally sleep with Steve again after months apart :-)

I slept for 4 1/2 hours which again is fantastic for me. The day planned, shower dressed and off to the Post Office to post Uncle Peter’s Calendars to Australia as promised, so Peter you should get them soon :-).

Returning home before 11 am as my treatment is planned everyday between 11 am – 1 pm. Intravenous drugs done, they also took bloods to check my white blood cells. Now all being well my treatment at home should stop on Thursday depending on the blood results. If they are okay all treatment at home  finally stops and off to the Isle of Wight we go :-) If more treatment is needed then the nurses have confirmed  that I can still go but they will have to contact the District nurses there for treatment to continue. So it’s all  fingers crossed that my blood results come back okay.

As mom and I returned home for the 11 am treatment my Cousin Nicky, my Aunty Shelia and Danielle arrived for their planned visit. It was so lovely to see them, just to have them here again was lovely and we all enjoyed 4 hours together. I was knackered after the visit and had to rest again but it was so fabulous seeing them I wish I had the strength to have continued to chat as I know we could have talked all day to catch up.

I should have taken a photo of them in the Daisy Den, which they love  but I didn’t and as  we ran out of time they also didn’t get to go in to the ‘Love Tub’ but we did get a photo all together in the dining room.

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Me, Danielle, Aunty Shelia, mom and Cousin Nicky :-)

More good news  is that DFS are delivering the new furniture early and it will be here on Thursday not Friday as planned and finally in the evenings we can be together as a family again :-)

Back to Calendars and as I thought they were on sale in High Wycombe BHS thanks to Mary from 9 am this morning. The other nominated stores are:

  1. Kingston Upon Thames x 100
  2. Staines x 100
  3. Bromley x 100
  4. Harrow x 100
  5. High Wycombe x 50
  6. Chichester x 150
  7. Isle of Wight x 200
  8. Woking x 50
  9. Uxbridge x 100
  10. Hanley x 100
  11. Merry Hill x 200

No other BHS Stores will have stock of the Calendars so if you don’t have one close to you then you can always still order them  through the blog, just follow the  link.

Thanks to Jacqui and James at BHS Head Office these stores will have stock by Wednesday and as they already have the promotional packs, thanks to Leanne then Calendars will be available and on sale for you all on Thursday :-) happy shopping. The process in stores in that it will have to be cash only, so you have been warned, go armed with your £7 cash.

So finally a massive thank you to BHS and the Head Office team for making all this possible by paying for the total print run of these Calendars as it’s appreciated so much, we couldn’t have done it without you.

 

 

 

 

A Great Day at Last :-)

Apologies for this very late post of the day but better late than never hey! And if you don’t read it tonight then at least you will have something nice to read on your way to work to brighten up those Monday morning blues. It’s so late that my editing team have all gone to bed so if there are any mistakes the complaints department is just me I’m afraid lol.

So I slept upstairs last night as planned, I tried to sleep lying down but that instantly sent my back into a spasm of extreme pain. 5ml of morphine later and I sleep sitting upright, I slept for almost 5 hours, wow. So up and awake at 5 am. My usual routine of feeding the ungrateful rescued cat, Tia and Molly Moo has been so all over the place for weeks that I think they have just given up on me and turn up when they like.

So drug taking starts at 6 am, with stomach protectors, just enough time for those important two coffees and a least two fags, lovely. So there I am sat in my Dream Machine Chair and it suddenly hits me, gosh I feel so well. Compared to yesterday and the awful 7 1/2 hours to get the pain under control, I have woken with background pain but that’s normal but what is different is that I feel so healthy. This is massive for me as I can’t believe that the patch of Fentanyl has made so much of a difference, it’s just amazing. What a pity that they don’t like to give them out due to the cost, can you believe that? Thank goodness for the Ian Rennie nurses who ensured I was given it. The best thing about them is that they will not cause me to be constipated unlike the 24 hour morphine which I was on that caused the constipation.

Now we have to talk poo for I moment, sorry but warts and all remember. Last week I went to A&E to check that there was no medical reason why I can’t go to the loo. After X rays it was confirmed that there was no medical reason at all but the results showed a massive build up of poo which just wasn’t moving. No wonder I couldn’t eat as there is no room left.

I have taken enough laxatives to shift a complete bowel blockage with no luck and then I started doing enemas at home for both for the small and all of the upper bowel and had some movement but just not enough. Dr Weaver gave me some special laxatives and he said that they take time to build up in the system but they were good.

So drugs taken I was enjoying my now two yoghurts for breakfast when I suddenly had stomach cramps and the need to go to the loo, wow I thought after weeks of no movement is this it! Now the problem that I now face is that I have very little stomach muscles and I am not used to pushing at all. So first go to the loo, not too bad and was happy what I had passed. I had at last gone and thought that would be it. Well without too much detail it went on and on and on and on. As soon as I thought it was over it started again. I was exhausted. I was so happy that mom and I had a mini celebration coffee and a fag, well I just had the fag but I was so pleased. I thought that would be all of it for the day, as there couldn’t be any more, could there?

So the day was planned for a short trip out to Homebase to get the last bits for Daisy Den and then off to Staples so that Steve could send out the Calendar sales ordered online in time for delivery as planned. So off we set. Homebase went well as did the trip to M&S for their wonderful stuffing for the roast pork dinner planned for tea. However in M&S I needed the loo again and had to go to the staff loo as I was so desperate, not a nice position to be in, it’s just embarrassing but the staff were very friendly and opened their staff toilets for me. We got to Staples and whilst their website advertises the Calendar envelopes, did the have any? No sadly they didn’t. So more expensive envelopes purchased but you lot are worth it :-) However again I needed the loo, we asked a young assistant if there were disabled loos and he just said “No sorry” so we found a female assistant who again let me use the staff room facilities, thank you to this lady as I was so desperate again and so embarrassed. So here is Steve with your deliveries which have already been posted at the main sorting office this evening and they will be with you all on Tuesday morning as promised. Uncle Peter I will post yours tomorrow Air Mail to Australia :-)

All posted :-)
All posted :-)

Then I had a donation from a very good and precious friend of mine Louise Lowe from school who has donated a massive £500 Beating Bowel Cancer, Wow I was blown away by her generous gift, now apologies for the grainy photo but Louise is on the left of me and Sam Bennett is just there for her good looks :-) Anyway thank you so much Louise, your donation is appreciated so much.

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I then had an email from James at HO with some photos of the conference evening where Jo and Region 9 presented me with all my goodies. This picture came from Jo this morning with a card to say that the picture completed the gifts, wow and thank you Jo and to all of you on Region 9 and my BHS Family.

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Jo surprising me with a bag of goodies
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Me looking completely shocked with all the presents from Jo and Region 9

 

And finally for today’s happy post here are Rita’s candles as ever and prayers said. Thank you Rita and everyone else who prayers for me as it is appreciated so much

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Catch you all tomorrow and love to you all xx

Oh and I forgot to say that Mary from our local BHS Store came round for coffee and cake today, it was so lovely to see her. She has the High Wycombe 50 Calendars plus the promotional pack so the Calendars will be on sale from tomorrow if I know Mary she will be on it first thing tomorrow, so happy shopping to all you High Wycombe supporters :-)

Plus I made another two sales today which I will add to the Just Giving page now. One sold to Mary and the other to the District Nurses who came today to give me my antibiotic treatment and was so impressed with them that she had to buy one :-)

Okay that really is it and catch you all tomorrow xx

Calendars and I couldn’t cope

Again sorry for the delay in today’s post. Lets start with the good stuff first shall we. So today the Calendars finally arrived, I was so excited to see the finished product. I’m so proud of what Steve has achieved. The quality is amazing. He has opened the online shop on the website, you just have to click on the photo to access it. The orders placed today and thank you for those will be posted out to you on Monday 1st class, you won’t be disappointed trust me.

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Click here to order yours!

I made my first sales and have sold 6, that’s £42 :-) I’m so proud that the fund raising has gone over £6k and when these hit our Golden Stores I know the product when seen will fly out. Again this couldn’t have been achieved without BHS exclusively funding the printing. What an amazing company I work for, I’m truly blessed.

So last night after a day of just background pain in my back which I’m used to and class it as a 2 or 3 out of the scale of 10 all nurses use. I got ready to sleep in my Dream Machine Chair. I was so tired and ready for sleep. For no reason at all my back went into extreme pain which I just couldn’t control. After an hour I had to take 5ml of oral morphine as I just couldn’t cope and I didn’t understand why. With morphine inside me. I slept all through the night, yes a miracle for me I know but when I woke at 6 am I was again in so much pain. I have to follow a daily routine of drug taking starting with tummy protectors and then I can’t take anything for an hour. So those taken I would now class my pain at an 8 and I’m scared, I feel like I’m going to faint, I’m all alone and feel like I’m going to pass out with the pain. I take two paracetamol, as this doesn’t effect the tummy protector as that’s for any Nurofen due to the high dosage that I take. I manage to get to the back door to get some fresh air and and I have to keep asking myself my name, trying to keep conscious. I moved into Steve’s office chair and with the back support it helps. Mom wakes at 7, I’m so pleased to see her. So now I can start taking stronger drugs and mom helps me. Nothing takes the extreme pain away, still rating it as an 8 and as the morning wears on I get even more into trouble where I would rate the pain as a 9. I take another 5ml of oral morphine and it doesn’t touch the pain at all. Steve called the Ian Rennie nurses team. I take another 5ml of oral morphine and again it didn’t touch the pain. Ian Rennie were with me with 10 minutes, the wonderful Suzanne. She didn’t need to ask how I was she could tell as could my poor loved ones that I was in trouble. She called the emergency Doctor to get some injectable medicine in me other than that I knew I may need to go back into hospital, The District nurses came in to do their treatment to me but by now I couldn’t even speak and don’t even remember the treatment being done. I just sat completely devoid of life, trapped in extreme pain. It took 7 1/2 hours for that pain to start to come down. I have been given a Fentanyl patch which should kick in tonight at around 10 pm. From 3 pm onwards I was able to function.  My poor loved ones again so worried about me and I just couldn’t hide it from them at all. It was just awful for us all.

So where am I now? Well I’m okay and I enjoyed watching Strictly Come Dancing, wasn’t Peter Andrei  amazing? He deserved to be top of the leader board :-)

Rita as it’s Sunday tomorrow please say prayers for my loved ones. Karen and for Frankie as ever. All the wonderful Ian Rennie nurses out there who as a charity were so wonderful for me today.

And finally I had a wonderful present from Jo at Region 9, the final gift from all their presents from conference. It’s a Daisy hand stitched picture which is just so beautiful. Now Daisy Den is now completely full. As much as I love all the special presents being sent to me, no more gifts otherwise I will need to get an extension, lol.   Love to you all and I’ll post more if I can tomorrow. xx

 

Quick update

So sorry that it’s late tonight but after a very big meal for me tonight I just fell asleep and I have woke up feeling so much better for it.

So this morning I didn’t feel well at all and Steve was very concerned as I just couldn’t focus or keep my eyes open. I really didn’t feel well at all. My day continued to improve though and this evening I do feel so much better :-).

Mom returned to us at midday and I’m so happy to have her back with us all.

So many special things have happened today that have made me so happy. Firstly I had two very special gifts for Daisy Den from two very special friends, thank you both so much.

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The new front room furniture will arrive next week and so after the longest time we can at least all sit together as a family and have quality curfew time, whatever we want that to be but we can all be together and that’s so important to me.

Parcels have been delivered for our new bed and I just can’t wait for this to be fitted so that I can sleep again with my Mr Wonderful.

The Calendars arrived and OMG  I am so proud of what Steve has achieved. They are so professional looking and I even made my first two sales to Sue our new cleaner, who has been a life changing addition to our team here.

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So this post is again short but sweet as I am so happy that everything is finally coming together here.

My final thanks is to my BHS family who have been so supportive and made things like the calendar possible and the changes our my home.

And final final thanks to my Angel Rita and everyone else who is praying for me and continuing to support me through this journey, I can’t thank you enough.

Catch you all tomorrow, much love to you all xx

 

 

Short but Sweet Tonight

So this morning after another sleepless night I really didn’t feel very well at all, everything was such an effort. I called mom this thing and she was worried but she is back down tomorrow and I’m looking forward to that. I had a call from the hospital to say that I wasn’t doing as well as I should be in terms of fighting off this infection and whilst the intravenous drugs being given to me at home every day were due to stop tomorrow I have to continue the treatment for another week. This will possibly delay me starting chemo again but I have to be strong enough to be able to cope with that so I have to be guided by the experts.

Just before treatment started the wonderful Emma from my BHS family in Kingston came to see me. She stayed and helped me set up Daisy Den, well we made a bloody good start. It was so lovely to be with her again and we had a lovely time.

Now these are only the first photos and I need shelves for all my Daisy Den gifts but at least it’s the first chance for you to see inside Daisy Den. It’s so warm and cosy in there and I’m going to love it. Molly Moo already does LOL.

Me and the wonderful Emma :-)
Me and the wonderful Emma :-)
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Daisy Den Bed
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Me with the all important coffee machine lol

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Now tomorrow we will have our allocation of the Calendars arriving, I’m so excited as Steve and I haven’t seen them yet. I’m so proud of what Steve has achieved through this and we will potentially raise £14,000 for Beating Bowel Cancer.  I also have to thank my BHS Family as without them funding the print run the profit to the charity would have been reduced so thank you so much BHS XX

So that’s you lot up to date for today, again sorry it’s short but it’s sweet and I need to rest. Love to you all xx

 

Missed info from ‘Warts and All’ plus the latest up to date information

Okay so here we go with the full background of ‘Warts and All’ first. This is going to be a very long post so you have been warned, no reading in the loo or in the bath!

Although I was discharged from hospital on 27th October, Rebecca and I on the 29th October returned via a taxi to the A&E department. I was in so much pain in my back due to the size of my tummy which has been caused by the lymphedema that I need to know if there is any medical reason why I can’t go to the toilet. X-rays were taken which left me in total bits as they insisted that I lie on my back and I can’t move. The pain is unbearable and I come out of the department sobbing as Rebecca knows how much pain that I would be in as they made me lie still on my back. The results showed that there was no medical reason why I couldn’t pass any bowel movements however the X-ray did show a mass of excrement that needed to be moved. I was glad there was no medical reason why I couldn’t go and so it was up to me to make this happen. We returned home via taxi and that cost us £60 that evening but it was quicker than waiting for an ambulance.

I talk about the £60 as this comes out of the awarded PIP money which the Ian Reenie nurses organised for me. Its a benefit which is awarded to any terminally ill people with less than a year to live. It is not means tested and I have been given the maximum amount of £139 per week. The taxi money was what this  benefit was designed for, supportive expenditure that you would not normally have to pay out on a weekly basis. This money has also funded the cleaner that I spoke about in yesterday’s post. Now the cost of the cleaner will take all of the weekly amount awarded but it’s worth it to reduce the stress to my loved ones and it enables me to focus on looking after myself the right way this time to ensure I am as healthy as possible.

As you know, I was lucky enough to be able to release some money from a pension fund due to my diagnosis. This has enabled us to do some work to make our home more comfortable for me. Daisy Den and the Hot Tub you all know about. I have also helped Steve buy a car as if I died we would not have a family car, as my car is a company car. I brought new furniture for the front room, this furniture reclines and is essential as it means that we can all be together as a family in our front room. I’ve ordered myself a new phone as my current phone is broken. Garden work to our home so that I can get around it safely. New patio doors for in my end of days room. New furniture for my end of days room. New office furniture for Steve as he works from home so much now and it is his responsibility to comply to with H&S. A new bed has been gifted to us by the BHS SOS fund. Finally a new fire to complete the front room.

Here are some of the photos of those changes taking place:

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Crane Hire
Platform ready  for Daisy Den :-)
Platform ready for Daisy Den :-)
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Old Window going out for new Patio doors ready to go in
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New Patio doors in place
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Daisy Den being constructed
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Daisy Den with final base coat of varnish applied and ready to move in to

A few months ago I was given a prognosis of 18 months from diagnosis when we knew that the first chemo treatment hadn’t worked. More recently Dr Weaver was asked to write a report regarding my prognosis for our life insurance company. He is now saying that on the balance of prognosis that if the new chemo works and that the extra KRAS treatment layered on top of the chemo treatment also works that my prognosis may now be 2 -3 years. It is great to know that not only do they think my prognosis of life expectancy has or will improve and that as long as the cancer is not in my vital organs I could actually after completing treatment be one of the 9% that actually survive and beat Bowel Cancer.

My decision to take a sick note is massive for me as I have continued to work apart from the following dates. Signed off for one week on 7th Feb, signed off for two weeks from 11th Feb and finally signed off for 4-6 weeks on 28th March. Apart from these dates previous to that I didn’t have a sickness issue at work and I want to continue to work and contribute to the company that I love to work for and is so important to me. So I sent Amanda Taylor in HR this email to explain the plan to her.

 

Hi Amanda,
It was lovely to talk to you today and here follows the plans proposed for the next two months:

Chemo starts on 18th November until then I have an enforced break from treatment to ensure that I am able to cope with cycle 5 of the planned 12.
If I can cope with the normal chemo then at some date they will administer the extra KRASS chemo which could extend my life by up to 30%
Last date of intravenous treatment at home is 5th November. Then no more treatment at home at all until we start again on 18th November, following suitable blood tests.
I have attached a PDF file of a sick note which covers me from 03/11/2015 for two months and then I will be in contact as regards my health and the possibility of returning and commencing with project work at home.
I will be taking a long weekend break somewhere before my treatment starts again as a short holiday and I’m telling you this as I want to be open and honest with you all.
I will post the original sick note into yourself tomorrow so that you have it for my file.
Please could you inform Kingston BHS of the sick note so that my wages can be processed correctly.

I hope that this is acceptable and that this email completes our paper trail for your records.

I would just like to add a massive thank you for your support and understanding throughout this difficult time.

This PDF is a copy of the doctors sick note

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So yesterday morning I had my bloods taken as well as intravenous treatment. As this treatment is due to finish on 5th November I also had a home visit from my Doctor who brought me my sick note, she checked all of my vital signs, which were all fine. The District nurses arranged a prescription for the enema which I was comfortable to do myself as the pain I am in is putting pressure on my already swollen tummy due to the lymphedema and if I can open my bowels then we believe this will relieve some of that pressure plus I have to be able to control my bowels on a daily basis. The enema was successful and finally I was able to move my bowels.

My swollen Belly
My swollen Belly

3rd November, yesterday I had already contacted my mom to inform her of what was going on and that I would call her later. She was worried that I had left this so late, so update with her complete I was just about to return to Steve when the phone rang. It was a doctor who had received the results of my bloods and that he wanted to come and see me, this was about 10 pm. My bloods were showing that I had a very low potassium level. He arrived and took all my vital tests again, blood pressure etc and asked if I was short of breath. I explained that I do struggle to walk around the house as I am weak on my right leg due to the lymphedema but this hasn’t changed. He said that the levels were so dangerously low that I may be at risk from a heart attack which would be fatal. Steve had to go before midnight to a pharmacy to collect the potassium prescription and that I must take straight away. He said that the blood tests would be run again tomorrow to see if the bloods changed or if the levels had returned to normal and that in the event of any symptoms of accelerated heart rate or shortness of breath I was to call 999 immediately. So after putting down the phone to my mom saying everything was fine I was back to a potential life threatening prognosis. After taking the potassium within about 1/2 hour I did actually feel better within myself. It’s now 3.30 pm today and I have just received news from the Doctors that my potassium levels are completely normal and I am not at risk of dying at any moment! How much stress can I take? Plus I was advised  to stop taking the prescription.

This morning I had a delivery and I had no clue what it was. It turned out to be a present from all of my BHS family the HR team at Head Office just to cheer me up and here are the presents.

How lucky am I?
How lucky am I?

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Last night prior to the doctors call I was arranging the planned break to one of the nominated stores to do a weekend away as pre arranged with BHS. Honesty is very important to me and we now have a delivery date to my house of the Calendars for this Friday, 6th November. All 10 stores will now receive their full promotional packs by Tuesday 10th November, confirmed today by Leanne Sinclair at Beating Bowel Cancer and the Calendars will be on sale in the 10 nominated stores by Wednesday 11th November. The plan for the 11th store, is for me visit the Isle of Wight. The hotel and ferry are booked. The photo opportunity, signing of the calendar my Mrs October herself will be a fantastic promotional opportunity for BHS as a company and the Calendar sales. So it’s all systems go with the planned visit to the Isle of Wight, the agreed treatment break but with BHS aware that I am going away, and will be continuing with my blog.

I’ve also just had confirmation that the new bed will arrive on 25th November and the new fire will be installed on 27th November.

So there you have it complete transparency and honesty with everyone.

Final thanks to Rita who upon hearing all the good news has gone to church to say prayers of thanks. Thank you my Angel.

 

 

 

Update on the horror of Ward 10 and Daisy Den

Okay so hearing about the experience of the past two weeks and seeing it is completely different, so here we go with the experience of the horror on Ward 10.

Firstly this noise went on all night long

Seeing how I am now in terms of the Lymphedema and the state that I was in whilst in hospital, again very different to see.

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My right leg is swollen due to the removal of the lymph nodes in my body and has left my right leg so weak that walking is just about possible around the house but has left me wheelchair bound.
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there were so many canulas in my arm that the pain was unbearable and I insisted they remove them. The only way that they could get bloods out of me was with a baby’s canula.
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The bruising left around my body is awful and this is just my left forearm

Just to cheer you up

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Now for some good news and just to cheer you up here is Richard on Halloween dressed as Britney Spears I believe LOL
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Daisy Den has full power and has just had it’s last varnish. In 24 hours the furniture can be moved in and we are then nearly finished. Just those lovely soft furnishings to put in place :-)

Now this post maybe short in terms of length but it’s all about the experience. The sounds that went on throughout the night that meant that apart from the bed I couldn’t actually sleep. The visual look of my body and what state I’ve been left in.

I hope that the short post will again back up the need for me to withdraw from you all for those few days.

I have also been now signed of sick for a period of two months from work with a review period so that if fit and well whilst on Chemo I may be able to commence project work at home. If not then this sick period will be extended.

Whilst on my treatment break I will be taking a long weekend break with my Mr Wonderful and you never know I may turn up in a store near you :-)

If Chemo is going well then at some point the extra KRAS gene funded treatment will be given and this could extend my prognosis by up to 2 years.

When I say that I’m doing things properly this time, I mean that I will take responsibility for my recovery and for once I’m putting myself and my loved ones first. A cleaner started today and this will mean that neither me nor my mom nor Rebecca will have that extra pressure and we will be taking more of those picking daisy moments when we are together as a family.

Internet orders for food shopping will be placed weekly so that this takes away the stress to Steve of yet another job that he was doing.

Changes to our home are nearly complete so that I can manage the best that I can at home whilst recovering. Pictures to follow.

I will be following up the estimated delivery times of the Calendars tomorrow and I will post up when they will be available at the chosen 11 BHS Stores.

I will continue to raise awareness about Bowel Cancer with your help and support by sharing my blog but not at the expense of my health any more.

I will attend Parliament and continue to challenge the unequal funding between Scotland England and Wales. Do whatever charity work I can do, to include interviews, press and any other form of media but again only if it isn’t putting my health at risk in any way at all.

So there you are ‘Wart’s and All’ as normal and that was always the deal with my blog. I hope that you will now understand the whole picture.

My BHS Family have been so supportive and I am so pleased when I read the comments left on my blog on how you now see BHS in a completely different light as the fantastic company that I know them to be and love them for everything that they have done for me, for fund raising and for the massive amount of love that they have given me. So many people facing this awful disease lose their homes or are dismissed as part of the process of employment rights, for example a contractor would just have their contract ended and this happens to people. I could have been facing all of this, losing my home but instead I consider myself very blessed.

The next iBook will be free as this was never about making money for us. Your words via the comments pages will form part of that book, I have already had fantastic reviews left on iBooks regarding this so thank you for leaving your reviews.

And finally thank you to you all who have sent me extra soft furnishing presents for Daisy Den. Karen Brindle AKA Potter sent me today the most amazing hand made bunting which is just beautiful, again photos to follow when it’s up. And I have also received a handmade  Daisy Den sign that is already in place, photos to follow.

And really really finally I must thank my Angel Rita Jackson who championed me for the SOS fund that has provided the NASA state of the art bed that will change my life with Steve and again this has been given to me by my BHS family. Sometimes there are just never the words to say thank you but I am as is my family eternally gratful for what my BHS Family have done for me.

 

Normal Service has returned

Well hello to you all and I’m so sorry that I haven’t been blogging but I’m back and ready to go.

I have missed you all and I just want to thank you for all your comments and good wishes. I just needed some time to get my head around the last week or two. What a whirlwind of emotions and trauma we have had. My poor loved ones have suffered so much and seen me so ill. We went on Friday the day of the Abseil from at 10.30 to you can go home at midday to a Doctor coming to see me  at 12 o’clock and saying forget cancer if this infection and the abcesses are around your heart you won’t survive two weeks, emergency scans followed and I’ve got the all clear. How do you process all of that?

Sepsis is awful and I was paralysed, I couldn’t move my body at all. Being in hospital was just terrible and I didn’t sleep at all whilst in there, or eat.

I love being at home with my loved ones and behind all the trauma they have been working so hard on Daisy Den and so that I’m happy when I get home. I am so blessed, I’ve cried so much, been through so much and yet at every turn there just seems to be a lucky angel looking after me. I think I was within hours of death with sepsis and when Steve called the Ambulance. Apparently our house was full of medical team within 4 minutes and can you imagine Steve standing and looking at all of this this unfold. I was out of it and as they suffer you don’t remember just flashbacks. The stress and worry day after day has taken it’s toll on us all.

So where am I now? Well grateful to be at home. The whole experience has left me in a bit of a sad state, I’m bruised and battered physically but that will get better every day. I’m left with a very attractive set of legs. My right leg has lymphedema which is where lymph nodes are removed and your body is fighting an infection it can swell up, very sexy and I have to wear a special stocking all day. I can only fit into my UGG boots so it’s a good job winter is here. The nurses come in everyday and I’m hooked up to a drip of antibiotics and then that’s it for treatment at home until 6th November.

Steve and I saw the Oncologist on Friday and we have a plan. They need me to be fit and well enough before we start Chemo again so I get a treatment break which I’m both happy and concerned about as the longer I’m not on chemo the risk of the cancer getting into my organs is higher however they are the experts and they say if I start chemo again too early I may get sick again and I don’t want that. So the plan is that I start chemo again on Wednesday 18th November and this will be cycle 5. That’s the normal chemo and then they will layer the extra chemo on top of that. The KRAS test being returned to me as having the Wild type of cancer which is good for me as I can have the extra treatment that may extend my life by up to 30% and not good for Richard and Rebecca as I have left them with the potential to have the inherited gene. Now I have told them that annual paid for tests is the only way to go. They have to be aware of the risk to them and their children. This is no bad thing actually as we all take are health for granted too much and think bad shit will never happen to us but it does and if you are aware of the risks you have control.

Now I’ve got to say how overwhelmed I have been by my BHS Family. They are paying for me to have a ultimate, state of the art Superbed  which will mean that after months of not being able sleep with my Mr Wonderful I will be able to. How on earth do you ever say thank you for that? The price is unbelievable for a bed but like the hot tub it’s a life changing piece of equipment for me and Steve.

The other thing that they have done is to agree to distribute the Calendars to all stores from our house as we were going to have to do this ourselves to save you all the cost. How fantastic is that? Plus they have agreed to  Merry Hill being an extra store so this takes all the pressure off my mom. How wonderful is my BHS family? They are just so fantastic and I can’t begin the thank them enough, sometimes there are no words big enough.

So I’m back to you all as I get so much love and support from you all, and it’s slowly but carefully fightback time :-)

I’ll be blogging again every day, don’t you worry with photos of Daisy Den. Thank you all for your love and good wishes.

 

 

I’m Home at Last :-)

Firstly apologies for the lack of my posts over the past few days. I was allowed home just yesterday and I can’t explain how happy I am to be home after such an horrific time in hospital and the roller-coaster of the past 8 days.

I appreciate the concern and love from you all but I need to just focus on getting well again and so after today’s post I will aim to be back blogging again by the weekend. I’m sure you will all appreciate my need for doing this.

Please share this update on Facebook as I will appreciate it so much. I will get through all of your emails and good wishes but I’m sure that you can appreciate that looking at an email in box of over 200 is just too much for me to cope with at the moment.

Please don’t contact me for a least two/three days I just need to just focus on getting well again, thank you.

Okay so I have been overwhelmed again by the support from my BHS Family and to stop my mom’s house becoming a distribution centre, BHS have agreed for an extra store to stock the Calendar and this will be in Merry Hill (Sorry Kaye as this maybe the first time you have heard of this). I will let you all know when they are in stock in this store.

And finally I promised you the back page of the calendar where we have placed some of the lovely shots that were sent to us but sadly didn’t make it into the final edition, so here it is for you as promised.

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